It's the 4th of July and My Child isn't the Only One Getting Older!

Posted by Haddad Nadworny on Tue, Jul 02, 2019 @ 06:00 AM

The Special Needs Financial Planning Team John Nadworny, CFP, CTFA | Cynthia Haddad, CFP | Alexandria Nadworny, CFP,  CTFA

New call-to-actionIn addition to documenting the details of your child's daily life, The Letter of Intent (LOI) is an appropriate place for you to describe the personal traditions and holiday activities that bring happiness to him or her. The LOI can be a helpful bridge for future caregivers to have insight into how to fulfill their roles.You may download a fillable LOI by clicking here or on the image. 

Sarah and Thomas, Part III

Below, the story of Sarah, and her LOI for her adult son, Thomas, continues.  Since Sarah's "ah-ha!" moment during her injury last winter, she set a goal to work throughout 2019 to complete a very detailed LOI for her son, Thomas.

Allowing herself the time to complete the LOI a bit at a time has been a great gift. It has freed her up to record the  important details of her daily life with Thomas through the lens of both his capabilities and her expectations. It has also led her to expand her thinking about what she does for Thomas to include and focus upon what is meaningful for him, what is comfortable for him, and what is joy for him.

bright-celebrate-celebration-769525

 

The 4th of July

This 4th of July,  will be a great day for my son. I know this because it always is.  He will get up in the AM and put on his Red Sox T-shirt.  While he is no doubt a super-fan, and the Sox always have a game on the 4th,  he wears it today because it's red, white and blue. He will be excited because I will have the day off and he will have friends and family all around and it is the middle of summer - the best time of year to be a New Englander. 

american-flag-flower-july-4th-1093645We always start the day with a neighborhood parade featuring children on their bikes which they have decorated with streamers, a salute to the flag, and coffee and doughnuts on our neighbor’s porch.  Thomas is out of the house by 8AM, as his  job, lining the parade route with miniature flags, needs to happen before any of the festivities begin.  Later, after we help clean up and pick up all the flags and store them in their box in our basement,  we will go to my cousin’s home for a BBQ.  There Thomas will drink too many sodas, eat too many hot dogs and basically have a great time. There will be fireworks, and sparklers for the kids and an infinite number of reasons to be thankful for and celebrate our freedom.  Thomas and I will drive home and go through our nightly routine before collapsing, exhausted by the sweet joy of the day.

Next Steps for Sarah

Sarah has made the LOI into more than a chronicle of Thomas’ daily life; she has created a diary of their life together. While no one will ever fully fill her shoes, the details in this LOI will give them an idea of  Thomas’ favorite things.  It makes sense to keep a diary for others to know these special moments. She is hopeful he will have people in his life to help him continue the traditions he loves.

She will begin by watching Thomas interact with neighbors and family this 4th of July, and mention to them how much joy this holiday tradition brings him. This might be the first step in asking people to be a part of Thomas’ life when she is no longer able to be there for him. She is moving forward.  

(Author's note: While the content in this post may stand alone, you may receive greater context by reading Sarah's story in Parts I and Part II of this series about parents' and caregivers' concerns as they and their children age. )

 

Tags: caregivers for special needs, special needs Letter of Intent, A Team to Carry On, Aging Caregiver

Part II - Whoa! My Child Isn't the Only One Getting Older!!

Posted by Haddad Nadworny on Sat, Apr 27, 2019 @ 07:00 AM

The Special Needs Financial Planning Team John Nadworny, CFP, CTFA | Cynthia Haddad, CFP | Alexandria Nadworny, CFP,  CTFAVisit our NEW Interactive Workshops Calendar

This blog kicks off a series illustrating a step-by-step approach to planning for the care of your adult child with special needs. Read Part I. 

 Part II - Figuring Out the Next Steps
bloom-blossom-feet-2120087

Adjusting Expectations - in a Good Way!

Sarah had a lot to think about but being sidelined had allowed her to step outside her daily life and see things she had been too busy to notice. While she was injured, Thomas had stepped up to help in so many ways. She had always viewed Thomas and their family life through the lens of his dual diagnosis of developmental disabilities and autism. While he had always had household chores, it had never occurred to her to ask him to do more; things like carry the laundry baskets to and from the basement, bring in the mail, and clear the front walk of newly fallen snow. With her direction and support, he was able to unpack and put the groceries from the PeaPod delivery away.

Sometimes it’s the small things that add up to big changes.  In thinking about his future living arrangements, Sarah realized she needed to consider both Thomas' expectations and her own.  She had some thinking to do about some very big questions.

Thomas Sarah
What are his capabilities and contributions to the household?

Was she ready to think about, talk about and plan for Thomas to live elsewhere?

What are his thoughts and preferences? 

Was she ready to build a network of people who would care about Thomas and be sure he is supported in his life?


heart-clip-art-heart_Clipart_FreeThe Letter of Intent – The Details of Daily Living.

 As a very important first step, we suggested Sarah begin filling out a Letter of Intent, the “Who, What, Where, When, and How” of Thomas’ life. With the information from the Letter of Intent as a starting point,  we would then work together to create the next level of Special Needs Planning; creating a Team to Carry On.  Download a fillable Letter of Intent here

 

 

Sarah and Thomas’ Team to Carry On

A Team to Carry On is a  plan for Thomas’ life when Sarah is gone or can no longer do all that she does today. Planning for a Team to Carry On is an evolving process, and we will be there to advise you every step of the way. There will be three basic steps:

  1. Tie together all of the Five Factors of Special Needs Planning involved in planning for Thomas’ future:
    1. Five Factors JPEG LogoLegal
    2. Family & Support
    3. Government Benefits
    4. Financial
    5. And last, but not least, Emotional.
  2. Discuss who might step in to take on Sarah’s many roles. Think about family, friends, community and professionals and their ability to take on responsibility in the future.  There are roles for people to play both big and small and as Sarah had experienced, the small things can make a big difference.
    • As an example, Sarah’s next door neighbor, who was very fond of Thomas, had helped be the liaison with transportation for Thomas to and from work for the few weeks she was incapacitated. Might this neighbor be someone to take Thomas to a baseball game each year?
  3. Communicate with and begin to involve the people on your Team in Thomas’ life today.
    • As an example, we have several clients who have begun bringing their adult child’s siblings to our planning meetings. There are many varied  roles a sibling may take on; everything from the responsibilities of a Guardian to just being there as a brother or sister.
    • Include non-siblings and others– cousins, aunts, uncles, neighbors and professionals to our planning meeting to let them know they are part of the child’s team.

 Read more about A Team to Carry On

Tags: autism, caregivers for special needs, special needs Letter of Intent, A Team to Carry On, autism and employment, Aging Caregiver, developmental disabilities

Whoa! My Child Isn't the Only One Getting Older!!

Posted by Haddad Nadworny on Sat, Apr 20, 2019 @ 07:00 AM

The Special Needs Financial Planning Team John Nadworny, CFP, CTFA | Cynthia Haddad, CFP | Alexandria Nadworny, CFP,  CTFA

Visit our NEW Interactive Workshops Calendar

This blog kicks off a series illustrating a step-by-step approach to planning for the care of your adult child with special needs. 

Considerable We have just been quoted extensively in Planning for your adult child’s care, when she’ll never be able to care for herselfpublished in Considerable, an online magazine. 

 

Part I - Meet Sarah

The moment the door closed for our meeting, our client Sarah, whom we’ve worked with for many years, said “We need to talk about what happened to me over the holidays. “ 

 The Wake up Call

bloom-blossom-feet-2120087She had simply been coming down the stairs of her home when she slipped on a tread and landed awkwardly, breaking a few of the bones in her right foot. Recovery from a broken foot is not a quick fix; the first week of complete immobility and pain had been followed by a few weeks on crutches, then a walking cast and then finally, she was able to walk unassisted, resume her daily activities and very importantly, wear her shoes!

The broken foot had healed but Sarah’s life had been upended in a way that she had not anticipated.  The accident had opened a window on the future, and given her a view of what life might be like as she grew older; a time when she might not be as strong or nimble as she is now. 

Sarah is taking this wake-up call very seriously, driven primarily by concern over the future care of her adult son, Thomas.  Thomas lives with her and has developmental disabilities.  He participates in a day program but right now, his other activities are limited and they spend almost all of their time together.

 

Working on a Plan 

Sarah had 3 questions she wanted to discuss and plan for:  

  • Where will Thomas live?
  • What supports will he need?
  • What resources do I need to make this happen?

While Sarah and Thomas have their own individual lives and circumstances, Sarah’s concerns are far from unique.  Many of the parents we work with have given voice to these same worries.

When we first meet someone, we usually begin with some basic questions.  We backed things up a bit and asked,

  • Who was your first call when you fell?
  • Does that person know Thomas” routine?
  • Does the agency running Thomas’ program have the authority to speak to this person?

We have learned that it is important to be sensitive to all considerations, particularly emotional factors, and how they may influence the motivation a parent has in planning.  It is very easy to feel overwhelmed and become frozen into inaction. We walk with them, step by step, to keep the discussion focused and moving forward.

 

Part II - Figuring Out the Next Steps - published next week. 

adult-beach-drawing-698899

 

Tags: parents of people with disabilities, caregivers for special needs, special needs Letter of Intent, Aging Caregiver

Summer Travel Plans? Check this list twice....

Posted by Haddad Nadworny on Fri, Jun 29, 2018 @ 11:00 AM

The Special Needs Financial Planning Team  Cynthia Haddad, CFP | John  Nadworny, CFP | Alexandria Nadworny, CFP  We are committed to offering educational workshops to organizations and parent  groups.  Please call Alex or click here to attend a workshop or discuss a presentation  to your group.

 activity-beauty-blue-61129

 

For many families, summer includes going away on vacation. Before you travel, you should do 2 things:

  1. Review the Pre-Trip Checklist from Smarter Travel to be sure you address everyday tasks, secure your home and collect all of the information you might need while you are away. Download the Checklist here.
  2. Have a completed copy of pages 7-12 of your Letter of Intent outlining all of the information someone would need to know about your child with a disability in case of emergency and/or you are not available. You can access a fillable Letter of Intent here.

 

Happy and safe travels!

Tags: special needs Letter of Intent

Year End Planning Tips for Families with Special Needs

Posted by Patty Manko on Wed, Dec 18, 2013 @ 04:40 PM

2013 2014 year end resized 600This is a great time of year to reflect upon what has happened in 2013 and enable you to set goals for 2014. Here are also a few additional planning strategies to consider.

1. Update your Letter of Intent (LOI)

This is a great gift idea too, not only for your child, but for yourself. Many of our client's give an updated copy of their child's LOI at the holidays to each of his/her future caretakers, guardians, and trustees. Keep your LOI up to date and you will have the peace of mind knowing that if anything should happen to you, then you have left a legacy of information and the vision you have for your child's lifetime.  The LOI is the one central place to put all of your child's important information and important people and agencies in his/her life. You can also tell others about daily routines, habits, hygiene, hobbies, preferences of your child, and so much more.  Click here to download a sample LOI.

2. Gifts from Grandparents

Please remember to say thank you first! This is the time of year that gifts of money can be in excess of the $2,000 limits. The annual gift tax exclusion amount is $13,000 for 2012. Unfortunately if given to your child or to an account in his/her name, this gift can jeopardize your child's eligibility for government benefits. Gift giving, if done properly, can be beneficial for everyone. Please contact us if you would like to discuss options for your own financial and estate planning.


3. Gifts to Charities

Don't forget to support the agencies that support your family members. This time of year, most charitable non-profit organizations and agencies are asking for your financial support. They do so to be able to continue to provide the services and supports to your family member. Most donations to these agencies are tax deductible to you. Don't forget to consider any matching gifts from your employer(s). This is our chance to give back and say thank you. If you would like to discuss options of charitable giving techniques for your own personal financial and estate planning, please contact us.

Contact us

We wish all our readers a very happy holiday season.

Tags: Special Needs Financial Planning, Special Needs Trusts, special needs Letter of Intent

Guardianship Considerations for Individuals with Disabilities

Posted by Patricia Manko on Thu, Jul 11, 2013 @ 01:47 PM

describe the imageGuardianship is a legal means of protecting children and  "incompetent adults" (in legal terms, adults who cannot take care of themselves, make decisions that are in their own best interest, or handle their assets due to a physical or mental disability). When the court determines that a person is incapable of handling either their personal or financial affairs a guardian will be appointed.

The subject of guardianship for an adult child with disabilities is of concern to most parents. Parents of children with severe disabilities often assume that they can continue to be their adult child's legal guardian during the child's entire life.

Although it may be obvious to a parent that a child does not have the capacity to make informed decisions, legally an adult is presumed competent unless otherwise determined to be incompetent after a competency proceeding. Once an individual reaches the age of 18, the parent is no longer the individual's legal guardian. Parents need to explore legal options available to protect their child from unscrupulous individuals who may exploit their child's inability to make informed choices.

Download a template for your Letter of Intent

Some things to know when considering guardianship:

a. A guardian of the person is responsible for monitoring the care of the person with disabilities to ensure that the individual is receiving proper care and supervision. The guardian is responsible for decisions regarding most medical care, education, and vocational issues.

b. A guardian of the estate or conservatorship should be considered for a person with disabilities who is unable to manage their finances and have income from sources other than benefit checks, or have other assets and/or property.

c. A guardianship may be limited to certain areas of decision making, such as decisions about medical treatment or medications in order to allow the individual to continue making their own decisions in all other areas.

d. A temporary guardian or conservator may be appointed in an emergency situation when certain decisions must be made immediately.

If an individual with a disability is capable of making some but not all decisions, one or more of the alternatives to guardianship discussed here should be considered. These alternatives to guardianship are listed from least restrictive to most restrictive:

1. A joint bank account can be created to prevent rash expenditures. Arrangements can be made with most banks for benefits checks, such as Social Security or SSI payments, to be sent directly to the bank for deposit. (Remember to keep this account balance below $2,000.)

2. A representative payee can be named to manage the funds of a person with a disability who receives benefits checks from Social Security, Railroad Retirement, or the Veterans Benefits Administration. Benefits checks are sent to the representative payee.

3. A durable power of attorney (POA) for property is a legal document that grants one person the legal authority to handle the financial affairs of another. Generally, the use of a POA should be used when the individual with disabilities has the capacity to make basic meaningful decisions and does not require full guardianship but may not be able to make complex financial decisions without support.

4. A durable POA for health care, also known as a health care proxy, should be considered for individuals who are presently capable of making decisions about their health care and wish to anticipate possibly future incompetence.

5. An appointment of advocate and authorization allows a person with a disability to designate an agent to advocate on his or her behalf with administrative agencies such as the state department of cognitive disability, the department of mental health services, or the department of medical assistance.

6. Trusts may be an appropriate alternative to appointment of guardian in some circumstances. A trust is a legal plan for placing funds and other assets in the control of a trustee for the benefit of an individual with a disability - or even for those with no known disability.

7. As mentioned previously, guardianship is an option for persons who, because of mental illness, developmental disability, or physical disability, lack sufficient understanding or capacity to make or communicate responsible decisions concerning their care and financial affairs. Guardians are approved and appointed by the court. Guardianships are also supervised by the court. The guardian provides a report on the status of the individual to the court annually.

In general, the guardian or conservator is responsible for handling the individual's financial resources, but is not personally financially responsible for them from his or her own resources.

This list of alternatives to guardianship is not exhaustive, but worth speaking with an attorney about. As with all legal decisions, we suggest you seek legal advice from an attorney who is knowledgeable in disability law in the individual's state of residence.

Contact us for  further information

Tags: Special Needs Financial Planning, Special Needs Trusts, guardianship, special needs Letter of Intent

The Letter of Intent and Your Child

Posted by Patricia Manko on Thu, Jun 20, 2013 @ 03:42 PM

guardianshipThe most important asset your child has is YOU.

Think for a moment about the specific instructions or guidelines you give to your child or his or her caregiver when you leave for just an evening out or a weekend away.Imagine if you never came back. 

Many families need a catalyst to encourage them to begin the planning process. A Letter of Intent simplifies the planning process by initially asking basic biographic information and progresses to more thoughtful and provoking questions. Since developing the Five Factors of comprehensive special needs planning, we have reorganized the content based upon these key elements in planning for your child’s future. By completing a Letter of Intent for your family member, you will begin to develop goals and objectives to assist you in the overall planning process. Ultimately, it will provide the details required for future caregivers to fulfill their expected roles based upon your desires and concerns.

No matter who you have entrusted to care for your child when you are gone—sibling, friend, relative, trustee, guardian, or organization—you can help guide that person by providing them the knowledge that only you, as a parent, possess. This is not a legally binding document, but it is still perhaps one of the most important documents you can prepare for the future well-being of your child. This is an opportunity to leave a legacy of all that you have accomplished with your child.

You need to periodically review and revise this Letter of Intent, perhaps on your child’s birthday, making certain to provide your child’s future caregiver with an updated copy. As every child is unique, so should this document be unique. Feel free to expand where needed and omit areas that are not applicable. Be flexible, be clear, and feel free to make it as personal as you wish.

To download a blank sample Letter of Intent, click on the image below.

describe the image

Tags: Special Needs Financial Planning, Letter of Intent, Trustee Services, guardianship, special needs Letter of Intent

Subscribe via E-mail

Follow Me

Special Needs Financial Planning
Our Most Recent

Special Needs Financial Planning
Topics We Follow

View More