The Five Factors of Special Needs Financial Planning

Posted by Patty Manko on Thu, Jan 24, 2013 @ 02:53 PM

five actors of special needs planningOne of the major obstacles that can prevent  families from planning is that they are frequently consumed by daily crises. The thought of planning ahead can simply be overwhelming. Realizing that each family situation is unique, we have identified the Five Factors that must be considered in conjunction with special needs planning.

These core planning points are by no means an exhaustive list of planning points. They will provide a baseline of what should be considered in special needs planning for every stage. Think of them as the basics you need to consider regardless of the age of your family member. They should, of course, be reexamined from time to time to be certain the recommendations stay current with your own family's needs.


FAMILY & SUPPORT FACTORS:

  • Ask the people whom you want involved with your family member's life whether or not they want to be involved before you just name them in your plan. 
  • Help prepare future guardians, caretakers, trustees and successors for their roles.
  • Complete a Letter of Intent -click here to download a sample letter of intent.
  • When grandparents or other friends or relatives offer to help by including your child in their gift or estate plans, say THANK YOU. 
  • Encourage them to have their advisors speak with your advisors who specialize in disability planning. 
  • Be connected with family support agencies in your area.

EMOTIONAL FACTORS:

  • Help your other children to meet and talk with children similar in age who also have a sibling with disabilities.
  • Seek professional help when you need it.
  • Be patient with yourself, your spouse and your family.
  • Learn as much as you can about your child's diagnosis and abilities.

FINANCIAL FACTORS:

  • Review your current financial plan -as often as possible.
  • Work with a professional who is knowledgeable in disability planning. Click here to view our checklist for interviewing a financial planner. 
  • Protect your family with adequate life insurance, long-term disability insurance, and long-term care insurance coverage for primary caregivers.
  • Identify all employee benefits for which you are eligible.
  • Do not establish a savings or investment account in your child's name.


LEGAL FACTORS:

  • Review your current estate plan -at least every five years. 
  • Create a Special Needs Trust
  • Name a guardian for your child or children in the event of your premature death or disability.
  • Check beneficiary designations on all life insurance, retirement plan accounts and annuities. These include employer benefit plans too.


GOVERNMENT BENEFIT FACTORS:

  • Advocate for your child. Join forces with your state & local advocacy agencies.
  • Know and pursue your child's legal rights and entitlements.
  • Maintain eligibility for your child's government benefits at all times, even if they are not currently receiving them.
  • Apply for Social Security Survivor's benefits promptly when a parent of a child with a disability dies.
special_ needs_financial_ planningFor further information about the Five Factors of Special Needs Financial Planning, click here to contact us.

Tags: Special Needs Financial Planning, Special Needs Trusts, five factors of financial planning, Letter of Intent, guardianship, special needs Letter of Intent

Using the Letter of Intent to Plan for Your Child's Future Today

Posted by Patricia Manko on Thu, Jan 17, 2013 @ 02:16 PM


Click here to view and print our January 2013 Newsletter featuring:

  • Financing Your Vision for your Child: Using the Letter of Intent to Plan for the Future Today
  • Housing Checklist
  • Presentation information
special_needs_financial_planning_newsletter
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To download a sample letter of intent, click here.

Tags: Special Needs Financial Planning, Special Needs Trusts, Letter of Intent, financial planning, special needs Letter of Intent

Year End Planning Tips for Families with Special Needs

Posted by Patricia Manko on Thu, Dec 20, 2012 @ 03:26 PM

year end resized 600This is a great time of year to reflect upon what has happened in 2012 and enable you to set goals for 2013. Here are also a few additional planning strategies to consider.

1. Update your Letter of Intent (LOI)

This is a great gift idea too, not only for your child, but for yourself. Many of our client's give an updated copy of their child's LOI at the holidays to each of his/her future caretakers, guardians, and trustees. Keep your LOI up to date and you will have the peace of mind knowing that if anything should happen to you, then you have left a legacy of information and the vision you have for your child's lifetime.  The LOI is the one central place to put all of your child's important information and important people and agencies in his/her life. You can also tell others about daily routines, habits, hygiene, hobbies, preferences of your child, and so much more.  Click here to download a sample LOI.

2. Gifts from Grandparents

Please remember to say thank you first! This is the time of year that gifts of money can be in excess of the $2,000 limits. The annual gift tax exclusion amount is $13,000 for 2012. Unfortunately if given to your child or to an account in his/her name, this gift can jeopardize your child's eligibility for government benefits. Gift giving, if done properly, can be beneficial for everyone. Please contact us if you would like to discuss options for your own financial and estate planning.


3. Gifts to Charities

Don't forget to support the agencies that support your family members. This time of year, most charitable non-profit organizations and agencies are asking for your financial support. They do so to be able to continue to provide the services and supports to your family member. Most donations to these agencies are tax deductible to you. Don't forget to consider any matching gifts from your employer(s). This is our chance to give back and say thank you. If you would like to discuss options of charitable giving techniques for your own personal financial and estate planning, please contact us.

We wish all our readers a very happy holiday season.

Tags: Special Needs Financial Planning, Letter of Intent, holidays for special needs

Siblings and a Letter of Intent

Posted by Patricia Manko on Thu, Nov 08, 2012 @ 05:18 PM


describe the imageParents should make a point to complete the Letter of Intent to document the important aspects of your child’s life. Share it with the future caretakers today, including siblings and make it a living document.  Don’t just leave it for them after you are gone.

 Determining Roles for Siblings to Play

 A pragmatic approach is an effective means to define a role for siblings. This approach can utilize assigning defined responsibilities.

Responsibilities may be shared.  Tasks and roles may be shared, which will allow a sibling to contribute without feeling overwhelmed that they have to be the ” everything” or “IT” person in the family.

Partner with a professional. Siblings can partner with experienced special needs planning professionals to help them provide the best solutions for their brother or sister.

describe the imageSome functional roles siblings may play:

Caregiver, Guardian

Health care proxy, Power of attorney,

Conservator, Trustee, Trust advisor

 Investment manager, Tax preparer,

 Bookkeeper to help pay bills,

 Representative payee for  SSI

  Advocate

                  Just be a brother  or sister!

For more information, click below to attend a presentation of No Sibling Left Behind or Planning is a Family Affair

Contact us for  further information

 

 

Tags: siblings, Letter of Intent, friendship, guardianship, special needs Letter of Intent

A Sample Letter of Intent for Caregivers

Posted by Patricia Manko on Thu, Oct 18, 2012 @ 05:50 PM

wishes6 resized 600The most important asset your child has isYOU.Think for a moment about the specific instructions or guidelines you give to your child or his or her caregiver when you leave for just an evening out or a weekend away.Imagine if you never came back. 

Many families need a catalyst to encourage them to begin the planning process. A Letter of Intent simplifies the planning process by initially asking basic biographic information and progresses to more thoughtful and provoking questions. Since developing the Five Factors of comprehensive special needs planning, we have reorganized the content based upon these key elements in planning for your child’s future. By completing a Letter of Intent for your family member, you will begin to develop goals and objectives to assist you in the overall planning process. Ultimately, it will provide the details required for future caregivers to fulfill their expected roles based upon your desires and concerns.

No matter who you have entrusted to care for your child when you are gone—sibling, friend, relative, trustee, guardian, or organization—you can help guide that person by providing them the knowledge that only you, as a parent, possess. This is not a legally binding document, but it is still perhaps one of the most important documents you can prepare for the future well-being of your child. This is an opportunity to leave a legacy of all that you have accomplished with your child.

You need to periodically review and revise this Letter of Intent, perhaps on your child’s birthday, making certain to provide your child’s future caregiver with an updated copy. As every child is unique, so should this document be unique. Feel free to expand where needed and omit areas that are not applicable. Be flexible, be clear, and feel free to make it as personal as you wish.

To view and download a a blank sample Letter of Intent,click on the image below.

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Tags: Special Needs Financial Planning, Letter of Intent

10 Steps to Plan for Your Child with Special Needs

Posted by Patricia Manko on Thu, Sep 27, 2012 @ 04:23 PM

As friends worry out loud about how they'll pay for their kids' college education, the parents of children with special needs have worries that extend beyond the few years it takes to get a college degree:

  • How will we pay for the special therapies our child needs now?
  • Who will pay our child's expenses once he or she becomes an adult?
  • Where will our child live and who will oversee his or her care after we're gone?

describe the imageThese daunting questions and fears stop many parents in their tracks but creating a plan can ease anxiety. Some of the issues you need to confront are financial: How do you set aside money for your child without affecting his or her government benefits? And some are emotional: Who would understand your child's needs if something were to happen to you right now?

Here are 10 steps to planning your child's financial future. Some are simple, some are challenging; some cost nothing and some require paying legal fees. Get started on some of these now, so you'll have peace of mind down the road.


1. Create a Special Needs Trust

A special needs trust is the most important part of your child's long-term financial plan. This is where you can put money that you save, that others give your child as gifts, or that you receive from an insurance settlement without worrying that these funds will interfere with your child's eligibility for federal benefits like Medicaid and Supplemental Security Income (SSI).

Even if you're unable to pay into a trust right now, set one up anyway. This way, you can make the trust the beneficiary of your life insurance policy and your estate, ensuring that those assets don't get passed to your child when you die. Why wouldn't you want your child to be the beneficiary of your estate? Because showing more than $2,000 in assets could make your child ineligible for federal benefits such as SSI.

2. Write a Will

A will specifies what will be done with your assets after your death. By writing a will, you make sure that your assets are left to the special needs trust and not to your child. Without a will, a probate court judge could name your child as a beneficiary, which could make your child ineligible for federal benefits (see above). The will is also where you can specify a guardian who will take care of your child.

When you have a child with special needs, a will should not be a do-it-yourself endeavor. Hire a lawyer who works specifically for people with special needs and is aware of your state's disability laws. Once the documents are drafted, have your lawyer keep one and then give copies to any executors or guardians named in the will.

Costs for this legal paperwork, including the will, trust, and powers of attorney, start at $1,500 and go higher depending on where you live. Contact the Academy of Special Needs Planners or the Special Needs Alliance for a referral to an attorney in your state.

3. Name a Guardian

A guardian is the person who will care for your child if you were to die before he or she becomes an adult. In choosing this person, consider how much time you now spend tending to your child's needs. Who can handle that type of commitment? Who has bonded with your child? Who has the patience, understanding, and other personality traits necessary to deal with the day-to-day responsibilities of raising your child?

Once you pick someone, ask the person if he or she can and will accept that responsibility (even though you hope it will never be necessary). And talk about how this commitment will likely stretch beyond when your child turns 18.

4. Name a Trustee

A trustee is the person who will be responsible for managing the special needs trust after your death. It can be a family member, a friend, or even a bank or lawyer. The trustee ensures that the money in the trust is spent only on your child with special needs and only on services that you've specified or that are appropriate to your child's needs. The trustee also supervises how the money in the trust is invested. The person who is caring for your son or daughter (the guardian) cannot spend any money in the trust without the trustee's approval.

And a word on trustees and guardians: They often are not the same person, and some financial advisors recommend that they never be the same person. By separating these roles, you ensure a "checks and balances" system for your child's future needs.

5. Build Your Savings

Parents of children with special needs quickly learn that just because a child needs a certain treatment or therapy doesn't mean that your school system will offer it or insurance will cover it. This is where personal savings become so important. Start putting aside whatever you can each month — no amount is too small — to cover these extra expenses. Just make sure you never put this money in your child's name.

Savings also can help pay for a special needs advocate, an expert in special education who can help you navigate the paperwork, programs, and laws that affect what services your child qualifies for. Special needs advocates can save parents money in the long run by using their expertise to ensure that kids get all the services they're entitled to from their local school district.

To find an advocate in your area, contact your local school district, organizations focused on your child's disability, or local colleges with special needs programs for a referral.

6. Write a Letter of Intent

Preparing for your child's financial future is important. But hand-in-hand with that is making sure that your child's everyday needs will be met should anything happen to you. That's where a Letter of Intent comes in. Is your child's daily routine very important? Write it down and be as detailed as possible. The same goes for your child's daily, weekly, and monthly schedules.

Create a list of contact information for your child's physicians, therapists, and other medical support people as well as current medications and their dosages and schedules. Are there people you don't want around your child or activities to be avoided? Write that down too.

And then once a year, update the letter. This is not a formal legal document, so you can draft it yourself. Keep a copy wherever you have copies of your will. And make sure that your child's appointed guardian has a copy too.

7. Plan for Your Child's Independence

When your child is about 16, start thinking about where he or she will live as an adult. In most states, people with special needs are 21 or 22 years old when they become ineligible for education services through the local public school system.

So start thinking: Will your child remain living with you? If so, will support personnel be needed during the day when he or she used to be at school? Are day programs for adults with special needs available in your area? If independent living is the goal, start investigating options in your community such as shared living, group homes, or apartments. Once you find a place you like, get on the waiting list if there is one.

8. Apply for Guardianship or Power of Attorney

Once children turn 18, they're considered adults in the eyes of the law. This gives your child the right to make medical and financial decisions. If he or she is not capable of this or needs your guidance, consider assuming legal guardianship or the less-restrictive power of attorney and health care proxy for his or her financial, legal, and health care affairs. This way you maintain the same supervision and control you had over these as you did when your daughter or son was younger.

Experts advise parents to hire an attorney to help with this process. This will ensure that you have all the powers you would need to assume control of your adult child's health care in the event of an emergency. If your child cannot or won't consent to you assuming power of attorney, the matter will likely be decided before a probate court judge.

9. Educate Family Members

Grandparents, aunts, uncles, and other loved ones might want to help out with expenses. But explain to them the importance of not putting anything in your child's name. Have a family meeting and explain why grandpa can't leave anything to your child in his will or name your child beneficiary on his life insurance policy. The same goes for gifts of savings bonds, stocks, or cash: nothing should ever be in your child's name.

And if your son or daughter will not attend college, there is no need for a 529 savings plan. Those funds can only be used for post-secondary education, not private schools, tutoring, or therapies needed before age 18.

If loved ones want to leave something to your child, they can. But tell them to name the special needs trust as the beneficiary to ensure that your child holds no assets of his or her own.

10. Need Help? Find an Advisor

If all of this is too overwhelming, as certified financial planners and  special needs financial planners, we can help. Ask your human resources department if your company offers this service as part of your benefits package. 

 

Source:Kidshealth.org

Tags: Special Needs Financial Planning, Special Needs Trusts, Letter of Intent

Checklist of Core Planning Points for Special Needs Planning- Part I

Posted by Patricia Manko on Thu, May 24, 2012 @ 01:08 PM

describe the imageThese core planning points are a baseline of what should be considered in special needs planning for every stage. Think of them as the basics you need to consider regardless of the age of your family member. They should of course be reexamined from time to time to be certain the recommendations stay current with your own family's needs.

 

FAMILY & SUPPORT FACTORS:

  • ASK the people whom you want involved with your family member's life whether or not they want to be involved before you just name them in your plan.
  • HELP prepare future guardians, caretakers, trustees and successors for their roles.
  • COMPLETE a Letter of Intent 
  • When grandparents or other friends or relatives offer to help by including your child in their gift or estate plans, say THANK YOU.
  • ENCOURAGE them to have their advisors speak with your advisors who specialize in disability planning. 
  • BE CONNECTED with family support agencies in your area.

FINANCIAL FACTORS:

  • REVIEW your current financial plan -as often as possible.
  • Work with a PROFESSIONAL who is knowledgeable in disability planning. See our checklist for questions to ask a financial planner.
  • PROTECT your family with adequate life insurance, long-term disability insurance, and long-term care insurance coverage for primary caregivers.
  • IDENTIFY all employee benefits for which you are eligible.
  • DO NOT establish a savings or investment account in your child's name.

Part II of ths blog will contain checklists for the Legal, Government and Emotional Factors in planning for your child with special needs.

Tags: Special Needs Financial Planning, Letter of Intent, guardianship

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