News and Events For Individuals with Disabilities

Posted by Patty Manko on Fri, Mar 14, 2014 @ 12:56 PM

 

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describe the imageOur Workshops

We are speaking at a number of events over the next month on a number of topics including:

The Special Needs Planning Timeline- highlighting the planning pressure points when parents must be aware of changes in their child's benefits, legal and financial standing.

A Team to Carry On- Planning beyond the wills and trusts to discuss guardians, trustees and how to carry forward your vision for your loved one when you are gone.

The Housing Workshop - A step by step planning guide for your child when they turn 22. Learn: What is needed, How much it will cost and how to do it.

View our workshop flyer by clicking on the image at right:

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People With Intellectual Disabilities Get a Say in Drug Trials

PJ BT675 CONSEN G 20140310163129 resized 600From the Wall Street Journal, April 11, 2014:

Doctors, researchers and drug companies are coming up with simple designs to address a complex ethical dilemma: how to make sure people with intellectual disabilities consent to join a drug trial.

With growing numbers of clinical trials getting under way involving conditions such as Down syndrome and Fragile X syndrome, researchers are trying new strategies to ensure people with the conditions, which typically involve intellectual disabilities, understand the risks and benefits of participating in trials.  To read the full text of the article, click here.

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Reaching My Autistic Son Through Disney

09autism2 superJumbo resized 600Ron Suskind tells the story of his family's life with Owen, beginning with his diagnosis of regressive autism at age 3 to today at age 20 and how Disney provided a means by which Owen could communicate.

This article, featured in the Sunday New York Times Magazine on March 9, 2014,  is adapted from “Life, Animated” by Ron Suskind, to be published April 1 by Kingswell, an imprint of Disney Book Group. Disney exerted no influence over the content of the book. The author acknowledges the rights granted to him for the use of Disney materials.

His premise is this: "There’s a reason — a good-enough reason — that each autistic person has embraced a particular interest. Find that reason, and you will find them, hiding in there, and maybe get a glimpse of their underlying capacities. In our experience, we found that showing authentic interest will help them feel dignity and impel them to show you more, complete with maps and navigational tools that may help to guide their development, their growth. Revealed capability, in turn, may lead to a better understanding of what’s possible in the lives of many people who are challenged."

Read the full article here.

Ron Suskind is a Pulitzer Prize-winning journalist and the author of four books about presidential power. He is currently the senior fellow at Harvard’s Edmond J. Safra Center for Ethics.

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